The rare skin disorder that Ramesh has suffered from has followed the boy for the past 11 years and gradually turned him into a stone statue, making him unable to walk or talk. When the scabs appeared on Ramesh, the other children looked at him with fear, then he was isolated and had no friends.Desperate because they couldn’t find a cure, Ramesh’s parents didn’t know what to do but watch their son gradually ‘turn to stone’ over time.

Nanda (Ramesh’s father) shared that Ramesh’s skin started peeling when he was 15 days old and then the skin gradually thickened. Then the skin started to harden and turn black but they didn’t know what to do to help the boy and no one could.

Doctors in Baglung, a remote area in Nepal, seemed surprised when Ramesh’s parents said he might be infected with some kind of fungus but they couldn’t treat Ramesh . Meanwhile, Ramesh’s illness became more and more severe, causing him pain.

Mr. Nanda said: “On Ramesh’s 5th birthday, he told us that he was in pain and couldn’t walk. After that, he couldn’t explain anything clearly to us at all . “.

“Ramesh can only signal to us when he is hungry or needs to go to the toilet. He sits and cries but we don’t know why he cries or how to help. Any child Anyone who sees Ramesh cries, turns around and runs away. It’s hard to accept this,” Mr. Nanda shared.

When he was 6 years old, Ramesh’s illness got worse and he couldn’t walk, so he never went to school. Even when Ramesh’s parents discovered the cause of their son’s illness – an extremely rare disease with the scientific name Ichthyosis, they could not do anything to relieve their son’s pain. Surname.

With a meager salary of 7,000 Nepali Rupees/month (equivalent to 1 million VND/month), Mr. Nanda does not have enough money to cover expensive treatment costs at private hospitals – places with full equipment. to help the boy, so he left Ramesh at home.

But fortunately, Ramesh unexpectedly received help from British singer Joss Stone. And after a video recording the image of Ramesh struggling with the disease was shared on social networks , Ramesh received help from famous Nepali singer Sanjay Shrestha. Sanjay Shrestha organized a concert to raise money for charity from people.

The concert was held in the capital Kathamandu, Nepal and raised £1,375 (equivalent to 35 million VND) to help Ramesh treat. For Ramesh’s parents, that help was like a blessing to their son and to their entire family.

Currently, Ramesh is being treated at Kathmandu Medical College, and doctors hope to make the boy’s life easier.

Dr. Sabina Bhattrai, an assistant professor of dermatology, said patients with this disease often have dry, thick, scaly or peeling skin. In many cases, cracked skin causes pain for the patient. However, Ramesh was hospitalized in very bad condition so doctors had to remove patches of skin from his body and this was very painful.

For about 2 weeks, doctors gave Ramesh antibiotics to avoid infection and some medications and moisturizers to remove dead skin. But the boy was admitted to the hospital late, this condition had lasted for a long time so his condition seemed to be very bad, making him unable to walk.

However, the boy’s bones and muscles are not weak, so doctors can try to help Ramesh stand up with physical therapy. And this made Nanda feel guilty that he couldn’t do something sooner.

Not only Ramesh, in Vietnam there are also unfortunate lives suffering from dangerous skin diseases. Like the case of Nguyen Dinh Ky, born in 2000, in Thieu Hoa district, Thanh Hoa province, suffering from pustular psoriasis.

I always have to live with stinky, very uncomfortable pus stains. Even though she had gone to many places for treatment and spent all her family’s assets, Ky’s condition still did not improve. Every day, the skin on my body peels off layer after layer, causing me a lot of pain.